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Örömmel adjuk hírül, hogy a WonderFlora & CMT Alapítvány

„Egy lépés kezdete a CMT-vel” 

címmel webináriumot szervez a Charcot-Marie-Tooth genetikai rendelleneségről.

A Charcot-Marie-Tooth, azaz a CMT a  leggyakoribb örökletes perifériás neuropátia, amely az izomzatot irányító perifériás idegrendszer működési zavara, a mozgató- és érző idegeket érintő megbetegedés. Általában lassan kibontakozó betegség, egyénenként teljesen eltérő tünetekkel. A betegség tünete az izomgyengeség, izomsorvadás, valamint a funkció és érzékelés elvesztése a végtagokban. Jelenleg több mint 3 millió embert érint világszerte, Magyarországon 4000 beteget tartanak számon. Fontos, tehetünk azért, hogy jobb legyen az életminőségük.

Az esemény időpontja: 2022. október 29.
Időtartama: 9.00-10.45.
Helye: Online 

A webinárumon való részvétel ingyenes, de regisztrációhoz kötött. Az itt elérhető regisztráción megadott email címre küldjük a konferencia belépési linkjét.

Az első szakmai online webináriumunk CMT témakörben. Célunk, hogy lehetőséget biztosítsunk újabb információk megszerzésére mindazoknak, akik Charcot-Marie-Tooth-szal élő személyeket segítenek, legyenek akár családtagok vagy szakemberek. Várunk minden CMT-vel diagnosztizált (vagy még nem diagnosztizált, de CMT tüneteket produkáló) érintettet.

A CMT, azaz a Charcot-Marie-Tooth diagnózisát nem könnyű felállítani. A végleges diagnózis alapját a klinikai tünetek, a családi kórtörténetek és a diagnosztikai vizsgálatok képezik. A webinárium rálátást biztosít a CMT genetikai hátterére, bemutatja az első legfontosabb diagnosztikai vizsgálatokat, továbbá megoldást nyújt a CMT-vel járó tünetek romlásának lassítására.   

Előadóink és témáink:  

Dr. Grosz Zoltán
Genomikai Medicina és Ritka Betegeségek Intézete
Elektrofiziológiai diagnosztika

Farkas Noémi
Fejlesztőház
Mozgásfejlesztés szerepe a tünetek lassításában

Érintettként csatlakozhat zárt Facebook csoportunkhoz, a CMT-ről további információkat ITT talál.

Az Alapítvány bemutatkozása megtekinthető ide kattintva

IMCAS is returning to China, and we're bringing the world of aesthetic medical science to your doorstep!

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It is with great enthusiasm that we extend our warm invitation to you for the upcoming ESOT Congress, set to take place in the vibrant city of London, United Kingdom on 29 June–2 July 2025.
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Join us in London for the ESOT Congress 2025, where we will not only fine-tune our knowledge on the latest medical breakthroughs, but also forge a path towards a greener and more sustainable future for organ transplantation.

Dear esteemed colleagues and friends,

It is with great enthusiasm that we extend our warm invitation to you for the upcoming ESOT Congress, set to take place in the vibrant city of London, United Kingdom on 29 June–2 July 2025.
As we gather for this prestigious international event, we will continue the established ESOT tradition of fostering collaboration and innovation across the continent. The focus of the congress will be two-fold: an exchange of knowledge in the ever-evolving field of organ transplantation and a call to arms on the most pressing global challenge of our time – climate change.

Our core congress theme, ‘Nurturing a sustainable transplantation journey’ reflects our commitment to considerate practices and long-term sustainability in both transplantation methods and associated environmental impacts. We will delve into this concept throughout the congress, acknowledging the intersection of environmental stewardship and the advancement of transplant care. With the guidance of an international lineup of experts, we will examine the impact of global warming on each step of organ transplantation and explore innovative strategies to make the whole journey for transplant patients more efficient and environmentally responsible.

London, a city steeped in rich history and cultural diversity, provides an ideal backdrop for our congress. From the iconic landmarks to the cutting-edge medical institutions, London encapsulates the spirit of progress and enlightenment, making it a fitting host for discussions on the future of transplantation.

Join us in London for the ESOT Congress 2025, where we will not only fine-tune our knowledge on the latest medical breakthroughs, but also forge a path towards a greener and more sustainable future for organ transplantation.

Dear esteemed colleagues and friends,

It is with great enthusiasm that we extend our warm invitation to you for the upcoming ESOT Congress, set to take place in the vibrant city of London, United Kingdom on 29 June–2 July 2025.
As we gather for this prestigious international event, we will continue the established ESOT tradition of fostering collaboration and innovation across the continent. The focus of the congress will be two-fold: an exchange of knowledge in the ever-evolving field of organ transplantation and a call to arms on the most pressing global challenge of our time – climate change.

Our core congress theme, ‘Nurturing a sustainable transplantation journey’ reflects our commitment to considerate practices and long-term sustainability in both transplantation methods and associated environmental impacts. We will delve into this concept throughout the congress, acknowledging the intersection of environmental stewardship and the advancement of transplant care. With the guidance of an international lineup of experts, we will examine the impact of global warming on each step of organ transplantation and explore innovative strategies to make the whole journey for transplant patients more efficient and environmentally responsible.

London, a city steeped in rich history and cultural diversity, provides an ideal backdrop for our congress. From the iconic landmarks to the cutting-edge medical institutions, London encapsulates the spirit of progress and enlightenment, making it a fitting host for discussions on the future of transplantation.

Join us in London for the ESOT Congress 2025, where we will not only fine-tune our knowledge on the latest medical breakthroughs, but also forge a path towards a greener and more sustainable future for organ transplantation.

Dear esteemed colleagues and friends,

It is with great enthusiasm that we extend our warm invitation to you for the upcoming ESOT Congress, set to take place in the vibrant city of London, United Kingdom on 29 June–2 July 2025.
As we gather for this prestigious international event, we will continue the established ESOT tradition of fostering collaboration and innovation across the continent. The focus of the congress will be two-fold: an exchange of knowledge in the ever-evolving field of organ transplantation and a call to arms on the most pressing global challenge of our time – climate change.

Our core congress theme, ‘Nurturing a sustainable transplantation journey’ reflects our commitment to considerate practices and long-term sustainability in both transplantation methods and associated environmental impacts. We will delve into this concept throughout the congress, acknowledging the intersection of environmental stewardship and the advancement of transplant care. With the guidance of an international lineup of experts, we will examine the impact of global warming on each step of organ transplantation and explore innovative strategies to make the whole journey for transplant patients more efficient and environmentally responsible.

London, a city steeped in rich history and cultural diversity, provides an ideal backdrop for our congress. From the iconic landmarks to the cutting-edge medical institutions, London encapsulates the spirit of progress and enlightenment, making it a fitting host for discussions on the future of transplantation.

Join us in London for the ESOT Congress 2025, where we will not only fine-tune our knowledge on the latest medical breakthroughs, but also forge a path towards a greener and more sustainable future for organ transplantation.