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GlobalSkin and ILDS Webinar - Creating the Rare Disease Movement: The Power of the Patient Community
Időpont: 2021.02.25.
Helyszín: online
GlobalSkin is excited to offer our Members programming as part of Rare Disease Day 2021 by co-hosting a webinar, with the International League of Dermatological Societies (ILDS. We are honored to have Dr. Ségolène Aymé, as our special guest speaker at this event. She is Emeritus Director of Research at the French Medical Research Council (INSERM) and the founder of Orphanet.

In 2008, Dr. Segolene Aymé co-authored a journal article entitled, Empowerment of patients: lessons from the rare diseases community. Reflecting on this essay, Dr. Aymé will speak about the power of patients and patient organizations with regards to the Rare Disease Community. She will share her unique perspective and talk about her important work with Orphanet and Expert centers.

We look forward to your participation in this webinar, as you continue to support your patients in new and innovative ways.

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